Illinois’ Persons with HIV or AIDS waiver
The Persons with HIV or AIDS (HIV/AIDS) waiver provides services and individualized support to persons with Human Immune Deficiency (HIV) or Acquired Immune Deficiency Syndrome AIDS who live in the home. These services are provided to those who would otherwise require care in a nursing facility. The HIV/AIDS waiver is a part of a program called Home Services Program (HSP).
- The Illinois Department of Healthcare and Family Services (HFS) is the state Medicaid Agency (MA) and is responsible for administration and oversight of this Home and Community Based Service (HCBS) waiver.
- The Illinois Department of Human Services – Division of Rehabilitation Services (DHS-DRS) is the Operating Agency (OA).
- Individuals can learn more about HSP on DHS-DRS' website: https://www.dhs.state.il.us/page.aspx?item=29738
- Providers can learn more about HSP on DHS-DRS' website: https://www.dhs.state.il.us/page.aspx?item=29752
The Eligible Population for the HIV/AIDS waiver includes:
Individuals of any age who are diagnosed with Human Immune Deficiency Virus (HIV) or Acquired Immune Deficiency Syndrome (AIDS) and are at risk of placement in a nursing facility.
To be Eligible for the HIV/AIDS waiver, you must be:
- A U S. citizen or legal alien
- A Resident of the State of Illinois
- Of Any Age
- Medicaid eligible or enrolled in the Health Benefits for Workers with Disabilities (HBWD) program. Interested individuals may download an application from the HBWD Web site.
- Medical determination of HIV or AIDS with severe functional limitations, which is expected to last for at least 12 months or for the duration of life.
- Be at risk of nursing facility placement as measured by the Determination of Need (DON) assessment.
- The cost of waiver services must be less than the cost of nursing facility services.
- Can be safely maintained in the home or community-based setting with the services provided in the plan of care.
Services and their Descriptions:
- Individual Provider
- Home Health Aide
- Adult Day Care
- Environmental Accessibility Adaptations
- Specialized Medical Equipment
- Home Delivered Meals
- Personal Emergency Response System
- Intermittent Nursing
- Extended State Plan Therapy Services (Physical, Occupational, Speech)
To see if you are eligible for services:
Contact the DHS-DRS local offices. Local offices can be found using the DHS Office Locator. You may also call: 1-877-581-3690 or 1-800-447-6404 (TTY) to talk to a DHS-DRS representative in your region of the state.
You may also select 'Rehabilitation Services' from the drop down box DHS Offices by county to find the DHS-DRS office address, directions to the office, and/or phone number available in your region of the state.
You can apply for DHS-DRS services online here: Rehabilitation Services Web Referral
Customers who get their HCBS waiver services through an Illinois Medicaid managed care organization may contact their care coordinator about the need for in home services and for assistance with a referral. Contact information for all Illinois Medicaid managed care organizations can be found here:
If you are requesting a referral directly from DHS-DRS, please inform the DHS-DRS Local Office representative that you are enrolled in a managed care organization. Have the name of the managed care organization and your 9-digit member identification number available.
- Individual Providers (IPs)): Services provided by individuals who are selected, employed, and supervised by the customer. These individuals may assist with or perform household tasks, personal care and, with the permission of a physician, certain health care procedures.
- In Home Service (Homemaker): Services consisting of general household activities (meal preparation and routine household care) and personal care provided by a trained homecare aide when the customer regularly responsible for these activities is unable to manage the home and care for himself or herself. Homecare aides shall meet such standards of education and training as are established by the State for the provision of these activities. This service will only be provided if personal care services are not available or are insufficient to meet the care plan or the customer cannot manage a personal assistant.
- Adult Day Care (ADC): Provides direct care and supervision in community-based setting for the purpose of providing personal attention, and promoting social, physical, and emotional well-being in a structured setting.
- Environmental Accessibility Adaptations: Services to physically modify the customer's home to accommodate the customer's loss of function in the completion of his/her Activities of Daily Living.
- Specialized Medical Equipment: Includes devices, controls, or appliances, specified in the plan of care, which enable customers to increase their abilities to perform activities of daily living, or to perceive, control, or communicate with the environment in which they live. This service also includes items necessary for life support, ancillary supplies, and equipment necessary to the proper functioning of such items and durable and non-durable medical equipment not available under the State Plan.
- Home Delivered Meals: One or more ready-to-eat meals per day which are delivered to the home. This service is provided to customers who can feed themselves but are unable to prepare a meal.
- Personal Emergency Response System: A 24-hour emergency communication link for assistance outside the customer's home based on their health, safety needs, and mobility limitations.
- Respite: Services provide relief for unpaid family or primary care givers, who are currently meeting all service needs of the customer. Services may include personal assistant, homemaker, nurse, or adult day care. Services are available for a maximum of 240 hours per year.
- Nursing: Nursing is provided within the scope of the State's Nurse Practice Act by a registered nurse, licensed practical nurse, or vocational nurse.
- Intermittent Nursing: Used for purposes of evaluating customer needs (including assessments and wellness checks) and monitoring.
- Home Health Aide: Provided within the State's standards for a Certified Nursing Assistant.
- Therapies: Provided by a licensed therapist. May be approved under the waiver if the customer is no longer eligible for therapies under the State Plan but continues to need long-term habilitative services.
Operating Agency Contact Information
Department of Human Services – Division of Rehabilitation Services
Phone: (877) 581-3690