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Advisory Council on Financing and Access to Sickle Cell Disease Treatment and Other High-Cost Drugs and Treatment Membership List
Chair
Lizzy Whitehorn, Director, Illinois Department of Healthcare and Family Services |
Director of HFS or their designee |
Members
Ifeanyi “Beverly” Chukwudozie |
One member with lived experience as a person with sickle cell disease
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Alexandra Carpenter |
One member with lived experience as a person with a condition requiring access to new, innovate drugs or treatment.
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Dr. James LaBelle, UChicago Medicine |
One member representing providers treating sickle cell disease patients.
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Dr. Ruchika Goel, Sothern Illinois University School of Medicine |
One member representing providers treating patients with another condition requiring access to new, innovative drugs or treatment. |
George Kitchens, Artia Solutions
Susan Stuard, Oregon Health & Science University
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Two members with expertise in prescription drug rebate negotiations and outcomes-based agreements.
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Steve Sproat, Aetna Better Health
Brian Smolich, Health Alliance Medical Plans |
Two members representing the health insurance industry.
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Melissa Creary, University of Michigan
Rachel Sachs, Washington University School of Law |
Two members with published research in financing new, innovative drugs and treatments within public health insurance programs.
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Dr. Anirban Basu, University of Washington
Rena Conti, Boston University
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Two members with health economist or actuarial backgrounds.
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TaLana Hughes, Sickle Cell Disease Association of Illinois |
One member representing sickle cell disease advocacy organizations.
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Nathan Schaefer, National Hemophilia Foundation |
One member representing advocacy organizations for a condition(s) requiring access to new, innovative drugs and treatment.
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Dr. Radhika Peddinti, La Rabida
Mark Trusheim, NEWDIGS, Tufts Medical Center |
Two at-large members who may or may not meet the qualification requirements for the other appointees.
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State Agency Members
Joan Ehrhardt, Newborn Screening Genetic Counselor |
One member representing IDPH |
Adam Flores, Senior Insurance Advisor |
One member representing DOI |
Theodore (Ted) Tapas, Budget Analyst II |
One member representing GOMB
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